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What is Pkd

If you have Polycystic Kidney Disease, please know you are not alone. Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases, affecting thousands in America and millions worldwide.

This site is dedicated not only to Ed and assisting him in finding a living kidney donor, but also to the many others who are also seeking living kidney donations. We hope you can find solace in the information provided in the Potential Donor Section. If you have any questions about any of the information listed on our website, please contact us.

To register to become a living kidney donor for Ed, please use the following link: Click here

We feel it is also important for potential donors and recipients to understand that direct matches are no longer the only way to obtain a living kidney donor, aside from a cadaver. Please ask your medical professionals about the National Pair Registry, Pair Matching Program. For more information on the Pair Matching Program, please view our link for the National Pair Registry.  

What Is Polycystic Kidney Disease?

, fluid-filled sacs called cysts develop in and around the kidneys. The kidneys then grow larger, as bigger as an American football, and gradually lose the ability to function, weighing up to almost 30 pounds each. In comparison to a healthy kidney, the kidney will eliminate waste from the blood and maintain the body’s chemical balance; is about a third of a pound, and the size of your fist, with a smooth surface.

PKD comes in three forms, a child (Dominant inheritance), an adult (Recessive inheritance), and in rare circumstances, a gene mutation of its own, however, for the most part, an individual will always obtain the abnormal gene from a parent. Those who are adults typically will discover they have the disease between the ages of 30 to 40 years old. 90% of all PKD cases come from a recessive inheritance, aka Autosomal Dominant PKD.

Polycystic kidney disease symptoms can include:

  • High blood pressure
  • Back or side pain
  • Blood in your urine
  • A feeling of fullness in your abdomen
  • Increased size of your abdomen due to enlarged kidneys
  • Headaches
  • Kidney stones
  • Kidney failure
  • Urinary tract or kidney infections

There is no cure for PKD, and the disease can only be treated via a transplant. In all kidney patients with end-stage renal disease, the best way to get to have further longevity with a transplanted kidney is for it to be via a living kidney donor, followed then by a cadaver if necessary.


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